Researchers at the University of Chicago have developed a multidisciplinary public health initiative that aims to make human rights an important component in the control and prevention of tuberculosis. The initiative is focused on low- and middle-income populations in India, which is home to a quarter of the world’s tuberculosis cases.
The rights-based approach utilizes litigation, legislative and policy advocacy, and grassroots activism to improve prevention and treatment outcomes and protect the rights of people living with and vulnerable to tuberculosis. If successful, researchers who have planned a lecture series in Beijing and Hong Kong hope to disseminate their ideas beyond India.
Brian Citro, lecturer and acting associate director of the Human Rights Clinic at the University of Chicago Law School, spearheaded the effort with Evan Lyon, assistant professor of medicine, and Kiran Raj Pandey, a physician and Health Services research fellow.
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Even though tuberculosis is a treatable illness, the World Health Organization estimates that it remains a worldwide leading cause of death arising from a single infectious agent. In 2013 alone, there were approximately nine million new cases of tuberculosis and 1.5 million related deaths.
Citro points out that the burden of the disease is disproportionately borne by low- and middle-income countries, which account for 95 percent of all deaths from tuberculosis globally. In recent years, drug-resistant strains of tuberculosis have occurred partially because there is no effective infection control and many patients cannot afford continued treatment.
“In India, this public health crisis is driven by social and economic factors and structural barriers,” said Lyon, who has worked on public health and clinical programs for tuberculosis and HIV for 15 years. As in other parts of the world, Lyon notes that individuals most vulnerable to tuberculosis infection in India are mostly poverty-stricken or persons living with HIV, drug users, prisoners and detainees. This population has no access to testing and treatment services, and lack awareness about the modes of transmission and prevention techniques. Besides social stigma and discrimination, poor sanitation and unhealthy living conditions have also exacerbated the situation.
“The end goal for our project is to change from the current biomedical-centered approach to a more rights-based one,” said Pandey, a Nepalese native who worked as a medical officer at a rural district hospital in Doti, Nepal from 2007 to 2009, managing a tuberculosis clinic and an anti-retroviral therapy HIV center.
Pandey said the project will focus on the legal obligations of governments to regulate and finance tuberculosis treatments and prevention programs through budget prioritization and equitable resource allocation.